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eldercare

Caregiving: Major Impacts to Work and Health for the “Boomer Generation”

An unprecedented number of Baby Boomers, that is people approximately between the ages of 50 and 70, are providing care for an aging relative – usually an aging parent. The substantial costs of care provided by these Boomer generation caregivers, while often considered  “free” for the care recipient, translate in terms of the caregiver’s own financial, psychological and physical health.

Caring for an older family member requires time, energy and money. Often these burdens are taken on unexpectedly as a result of an accident (like a fall), health incident (a stroke for example), a chronic medical condition (such as diabetes or dementia), the progressing years of aging or a combination of any or all of these contributing factors.

Why Boomers Are More Likely to Become Caregivers

Advances in medicine and medical technology, as well as social advances, have significantly increased longevity in the US. Compared to their parents’ generation of the same age-span, the Boomer generation is more likely to have parents or older relatives who are still living. These longer living relatives are now living with chronic conditions and dementias, at never before seen rates. Furthermore, the longer a person lives with chronic conditions and/or dementia, the more likely that person will require care. 1

Multiple studies have shown that adult women are much more likely than their male counterparts to be involved in ongoing care responsibilities. 2  These duties range from managing finances, to managing medications and medical appointments to providing hands on care such as bathing or dressing a person.

Financial Issues for Caregivers

Nearly 70% of caregivers report the need of having an employer make accommodations because of their caregiving duties. These  workplace accommodations include arriving to work late and/or leaving early, taking unexpected time off or cutting back on work hours. Ultimately, and employee who is a family caregiver may have to change positions, change jobs or stop working entirely. 3

A MetLife study found that the 10 million caregivers over 50 who care for their parents lose an estimated $3 trillion in lost wages, pensions, retirement funds and benefits. Costs are higher for women who lose an estimated $324,044 due to caregiving, compared to men at $283,716.4

Cost to Caregiver Health

Family caregivers are often suffering from chronic stress,  which can comprise their psychological and even physical health. In fact, caregiving fits the formula for chronic stress so well that it is used as a model for studying the health effects of chronic stress. 5

An extremely high percentage of caregivers suffer from depression due to caregiving. Many caregivers report that they are experiencing stress and/or panic attacks, pain, aching, headaches and weight gain/loss. Many report that their own self care is in decline and that they have missed their own health care appointments. 6

When caregivers’ responsibilities and concerns are taken in the context of the responsibilities they have for their own lives, including work and family; they are often completely overwhelmed. Caregivers believe that the stress they are experiencing takes physical form as increased blood pressure, heart attack scares, arthritis flare-ups and other conditions. People who care for a person with dementia often suffer even more severe negative psychological and physical health effects than other caregivers. 7

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The cost to US businesses is becoming enormous and will only continue to rise as the more of the population lives even longer.

According to a 2015 Cerridian study, U.S. businesses lose an estimated $38.2 billion annually in lost productivity due to workers’ caregiving responsibilities. These costs are often associated with replacing employees, absenteeism, workday distractions, supervisory time, and reductions in hours from full-time to part-time.

The study indicates that employers could be doing more to support employees with caregiving responsibilities. For example, only 56% of study respondents report that they have the support of their direct manager in their caregiving role and only 20% of study respondents claim that their employer offers all four of the following support programs: paid time off, unpaid time off, the option to work from home and a flexible work schedule. 8

Anne Conrad-AntovilleAnne Conrad-Antoville has worked with hundreds of families regarding senior healthcare issues and is CEO and a founder of Champion Advocates LLC, a geriatric case management firm serving elders is Portland, Oregon and  family caregivers across the USA and Canada.

1 AOA-Older Americans 2012 Key Indicators of Well-Being;The Federal Interagency Forum on Aging-Related Statistics

2 Unpaid Eldercare in the United States-—2013-14 Summary, Bureau of Labor Statistics

3 Valuing the Invaluable: 2011 Update: The Economic Value of Family Caregiving. AARP Public Policy Institute. – Updated: 2015

4 MetLife Mature Market Group. (June 2010) and National Alliance for Caregiving, Study of Working Caregivers and Employer Health Costs: Double Jeopardy for Baby Boomers Caring for their Parents- Updated: November 2012

5 Vitaliano PP, et al. Is caregiving hazardous to one’s physical health? A meta-analysis. Psychol Bull. 2003;129(6):946–72. [PubMed])

6 Evercare Study of Caregivers in Decline: A Close-up Look at the Health Risks of Caring for a Loved One, National Alliance for Caregiving, Evercare 2006

7 Physical and Mental Health Effects of Family Caregiving Richard Schulz, PhD and Paula R. Sherwood, PhD, RN, CNRN

8 Ceridian Study Reveals The Challenges Of Caregiving & Its Significant Impact On Productivity & Engagement In The Workplace – 2015

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2015 McGinty Alzheimer’s Conference- Portland Oregon

This year’s annual McGinty Conference on Alzheimer’s will be held November 3 at the Oregon Convention Center. It is open to family caregivers and professionals.

Register at: alz.org/oregon

Be sure to attend breakout sessions presented by dementia and aging experts including:

The Action-Compassion!Technique Series:
Redefining the Assessment Process for Improved Outcomes
Session B2 from 12:45-2:15PM

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Champion Advocates LLC

Geriatric Case Management Services

 

The Action-Compassion!Technique is a dynamic methodology in long term eldercare management focusing on the multi-level challenges of the diagnosed elder through the lens of the family caregiver. Effective assessment processes are the first step to good care planning and worthwhile service implementation. By better understanding the full range of challenges faced by the family, it is possible for the professional to save valuable time and energy for everyone involved. This technique is designed for the case manager within a private practice, yet can be used across multiple service fields, including medical, social, legal and financial services to better
serve elders and their families when facing the many issues of long term care for dementia.

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New Year’s (re)Solutions: Actions to Take for the Elders in Your Life

Did anything alarm you when visiting with older relatives during the recent holidays?

You may have detected any one of the classic red-flag indicators that an accident or injury could be on their horizon.

Perhaps, you saw a trip hazard that can lead to a fall, so consider removing:

  • Coffee tables and ottomans
  • Throw rugs
  • Clutter in pathways
  • Electrical cords from foot traffic

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Also, repair:

  • Unstable walking surfaces, like loose steps or paving-stones
  • Handrails that are not properly secured to walls or posts

Maybe, you recognized poorly lit areas that can cause an accident.  Light up and brighten up:

  • Cooking area and surfaces
  • Sewing, woodworking and other hobby stations
  • Hallways and pathways

Focus on:

  • Seasonal Affective Depression with appropriate lighting by introducing bright light therapy and/or using blue or blue-green spectrum light.

Did prescription and non-prescription medications appear to be a source of concern?

  • Get an updated list of current medications from all prescribing physicians and compare with the medications in the home.
  • Safely get rid of any outdated medications.
  • If there is any confusion regarding medications for you or your loved one, request a pharmacological review from the primary physician.

The New Year is a great time to resolve lingering concerns and worries from last year. By acting now, you can head into 2015 with greater confidence that older family members are in a better place to begin another year.

 

© Anthony Antoville 2015

Anthony Antoville is Care Manager, Certified and COO of Champion Advocates LLC in Portland, Oregon providing geriatric case management services. He is a recognized expert in eldercare and home safety, internationally published with The Edwin Mellen Press.

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Medical Alert Devices – Too Little, Too Late

An older woman cries out pleading for help from the bottom of a stairway in a large and empty house, and we are led to the conclusion that if only she had a medical alert device worn around her neck she could have emergency first responders there in minutes.

But what then…? How does the second half of this supposedly “averted” tragedy play out?

As reported by the Centers for Diseases Control and Prevention (CDC)*:

“In 2010, 2.3 million nonfatal fall injuries among older adults were treated in emergency departments and more than 662,000 of these patients were hospitalized.”

“People age 75 and older who fall are four to five times more likely than those age 65 to 74 to be admitted to a long-term care facility for a year or longer.”

So instead of lying on the floor for hours or days incurring additional life threatening conditions or worse, our female victim is whisked to the hospital and most likely will be treated and then discharged to a long-term care facility, either an assisted living or a skilled nursing facility for a year or more or until the end of her life.

The ability to lie on the floor and push a button may provide some level of comfort and security to seniors and their families yet when the fall has already occurred and resulting injuries sustained, the reality is your parent is lying there just pushing a button for help.

Now, a life will change in ways not to be desired by anyone. He or she will most likely be shuttled into a vast medical system to wind up in a bed that is not theirs and to no longer live in their own home.

This is the real fear older people live with. The fear of losing their independence and being institutionalized needlessly or prematurely.

If only the family had pushed beyond the simplistic notion that technology and telecommunications were all that was needed to keep mom or dad safe. If only our fear-based advertising could help us consider what happens after that last ditched effort is activated. Then, we could achieve compassionate aging for everyone concerned, senior and family caregiver alike.
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Like the CDC states*:

“Each year, one in every three adults age 65 and older falls. Falls can cause moderate to severe injuries, such as hip fractures and head traumas, and can increase the risk of early death. Fortunately, falls are a public health problem that is largely preventable.

Geriatric case managers are qualified professionals to identify and evaluate many safety risks based upon mobility, vision and other physical deficits, environmental factors around the home, medical and behavioral conditions. By providing comprehensive assessments including balance and gait and home safety assessments, appropriate provisions and safeguards can be allotted and falls and many other unrealized dangers can be truly averted.

Medical alert products and services are worthwhile, but they are the very last line of safety. If they are to provide comfort and security, they should be part of a much more comprehensive approach to an elder’s care – one where that button need never be pressed.

© Anthony Antoville 2014

Anthony Antoville is Care Manager, Certified and COO of Champion Advocates LLC in Portland, Oregon providing geriatric case management services. He is a recognized expert in eldercare and home safety, internationally published with The Edwin Mellen Press.

*The Centers for Diseases Control and Prevention (CDC) Website “Home and Falls Among Older Adults: An Overview” Last Updated: 9/20/2013

 

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Love Until the End of Life

The recent love story that has captured the hearts of millions around the globe is the one of a 62-year marriage between Maxine and Don Simpson of Bakersfield, California.

The images of Don and Maxine holding hands, while lying side-by-side in separate hospital beds, has fired imaginations and hearts everywhere.

And while The Simpsons’ genuine devotion and enduring love for each other is wonderful, it is not the striking chord to this moving story. Nor is the amazing account of how they died only four hours apart from one another with Don finally passing at the moment the family removed his beloved Maxine’s body from the room.

The real heart here is that of the family caregivers. In particular, the two granddaughters who initiated the couples reunion were able to see beyond the many significant challenges created by their grandparents’ major health issues and the consequential logistics involved in such a move and the resulting care that would be required.


A family being sensitive to the emotional and physical needs of their elders is not unique, in itself. Countless families jump in and tirelessly perform endless caregiving tasks every day. What shines through the many layers of this tale is that this family recognized what was needed at the end of these two people’s lives. It was to bring them together in a family home setting and to allow them to simply be. No more medical interventions; no self-serving grieving at the bedside. Just time together.

Melissa Sloan, one of the grandchildren, realized that her family was committed to keeping Don and Maxine together until death did them part, and she did just that.

I have seen how people often become confused when witnessing a loved one reach the end of his or her life, let alone both parents simultaneously. It is common at those last stages of the dying process for family members to become overwhelmed with their own emotional needs and lack of ease during these “real” moments of life.
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Understandably, many families are unable to achieve this depth of compassionate aging, because our western society and contemporary culture mostly fears death and dying and rarely permits us to take the time to allow a life to gracefully and gradually repose into its final earthly state.

However, this family discovered a way to honor the elders for whom they cared, while making the most of what precious time everyone could share together.

 

© Anthony Antoville 2014

Anthony Antoville is COO and geriatric case manager with Champion Advocates LLC in Portland, Oregon. He has been serving the psychosocial needs of seniors since 1991. Anthony is a published author with The Edwin Mellen Press.

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Self Compassion and Aging

Let’s be clear. Aging begins from the moment we are born.

In contemporary western society, we tend to view the aging process as positive up to a certain point. The turning point is somewhere in that upward “moving target” that counts as mid-life. From that point, we tend to view aging as a negative process and something to be fought against.

We have all become strongly influenced by advertising for a plethora of “anti-aging” products, counterbalanced with a youth-obsessed focus. Medical efforts and campaigns to cure countless conditions and diseases have been woven into our everyday experience, which can create for us a strange unspoken expectation that western medicine will someday cure us of all diseases and even overcome death itself.

We may experience unwanted reactions to these “anti-aging” and medical messages. The reactions can include unrealistic and unattainable expectations for ourselves and for those we may care for.  If our baseline is unrealistic, we can be much too hard on ourselves.

For example, for the person who is a caregiver of an older family member; guilt can become overwhelming when the older person’s health goes into decline. The flawed expectations of a treatment for aging and eventual death cannot be realized. This form of guilt can become self-debilitating and detrimental to the caregiver’s physical and mental health.

For those of us who are passing the mid-life point, our own thoughts can become self wounding and cruel as we find it increasingly difficult to fit ourselves into the a youth-based straightjacket as we age.

Moreover, other cultural conditioning can make it difficult for us to allow ourselves to be self compassionate. At a recent leadership training that I attended, the accomplished female speaker noted in an offside comment, “I have always found it easy to be compassionate for others, but difficult to be compassionate to myself.”
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Why be self compassionate about aging?

Self compassion allows us to be present in the true moment. It helps us to forgive ourselves, to heal our wounds and to appreciate our own best efforts. It allows us to be truly compassionate in our service to others. Self compassion frees us of unnecessary burdens, allowing us to age from our center of being with grace and with wonder.

© Anne Conrad-Antoville 2014

Anne Conrad-Antoville cared for her disabled mother from her pre-teens through her mid-thirties, when her mother passed away. This experience inspired Anne’s eventual work in professional aging services. Anne is currently CEO and a geriatric case manager for Champion Advocates LLC and manages Working Woman Aging Parents.

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Caregiving: A National Workforce Crisis in the Making

A study from the National Alliance Caregiving and AARP determined that about half the workforce will be providing some type of eldercare by 2017.

This stunning statistic has been steadily increasing over the past few decades due to increased longevity of people with increasingly significant medical and care needs.

In 2006, the MetLife Mature Market Institute determined that the annual cost to US employers for worker accommodations due to caregiving topped $33 billion. 2  This is a significant chunk for the US economy.

On the individual front, caregivers who need to take time off work, cut hours, change jobs or even stop working entirely can significantly impact their personal income, career goals and lifetime financial health.

Working caregivers who cut hours or change jobs may also lose benefits including company health insurance, potentially affecting their personal health over time.

Unfortunately, my experience as a geriatric case manager in the field reveals that family caregivers often spend time and energy in misdirected actions.

These misdirected actions are often the result of unreasonable expectations, lack of knowledge and expertise and absence of meaningful support. The wasted time and effort negatively affects a large circle including the caregiver, their spouse and family, the employer and work teams, and most importantly the family member who is receiving the care.

The possibility to head off a national crisis begins by addressing the implicit and unreasonable expectation that all responsibilities of care must default to the family caregiver.

The “default to the family caregiver” concept is promoted by government, medical institutions, medical providers, cultural institutions unwilling to fund multifaceted support and members of older generations who have not had the experience of parents with these current longevity issues.

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© Anne Conrad-Antoville 2014

Anne Conrad-Antoville

Anne Conrad-Antoville is CEO of Champion Advocates LLC in Portland, Oregon. She has helped hundreds of families with professional geriatric case management services and other supportive services for seniors. Anne is also President of Working Woman Aging Parents.

 

12012 AARP Fact Sheet – Understanding the Impact of Family Caregiving on Work

2MetLife Mature Market Institute®National Alliance for Caregiving
July 2006The MetLife Caregiving Cost Study:Productivity Losses to U.S. Business

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